“The Ketogenic Diet Service at the Great North Children’s Hospital is now into its 2nd year. We are delighted with the service provision so far but we are continuously trying to improve knowledge and support for our families.
One of the changes we thought would benefit families was a parent support group that would run 3-4 times a year. Within this group we would aim for both a formal and informal sessions, for example outside speakers, cookery demonstrations, latest research and tips and tricks to help families.
We also thought that we could offer a summer trip for the children, their parents and their siblings, which we could partly fund and would give them something to look forward to. The funding received from Matthew’s Friends will be a massive contribution to help our service continue to improve and support the children and families through a difficult time.”
Lucy Cook – Paediatric Neurology Nurse Specialist, Lead Ketogenic Diet Nurse