It has been another hectic year at Matthew’s Friends as we continue our work with medical Ketogenic Dietary Therapies.
As always, our priority has been to support those families and individuals living with complex epilepsies and epilepsy syndromes, Glut 1 Deficiency, Pyruvate Dehydrogenase Deficiency and Brain Cancer. We have supplied free starter packs as well ketogenic goodies and treats to families being treated by hospitals from all over the UK and Ireland who are on ketogenic dietary therapy and our ketocook Mo, has been busy in our ketokitchen developing some outstanding new recipes as well as helping families with their own individual prescriptions. Our telephone support line has been open every day this year as usual and this will continue to be open throughout the festive season should you need it (details below).
We have also held training and education meetings by way of our KetoCollege programme, produced supportive literature and clinical case studies as well as filming practical tutorials and cooking demonstrations for families and professionals alike, freely accessible to all, wherever in the world they may be. We have put funding into 2 further hospitals as well as keeping our own clinic open with a team of highly dedicated dietitians, dietetic assistants and neurologists, treating both children and adults. Our support of clinical trials also continues with funding being put into projects looking at exactly HOW ketogenic dietary therapies work and if we can target certain syndromes and individuals earlier rather than later.
2018 is looking equally hectic as several big projects near completion, including online tutorials for professionals in resource strapped areas of the world and we also host the 2nd European Glut 1 Deficiency Conference which brings together experts in this field with the families and we are very much looking forward to this.
Our work with the European Reference Network for rare and complex epilepsies (EpiCARE) is beginning to gather momentum as we lead the Ketogenic Dietary Therapies working group, spreading awareness and providing training courses and guidelines on these diets to all hospitals across Europe and giving hope to patients that can’t currently access this treatment.
As usual, none of this could be achieved without the generosity of all our fundraisers and supporters. So a HUGE thank you to all those that have donated raffle and auction prizes, ran marathons and half marathons, held coffee mornings and bake sales, went #sugarfreeforepilepsy, jumped out of planes, cycled and swam, to name but a few…..you are all stars in our eyes.
If you do have anything spare and wish to make a donation this Christmas please do so via our Christmas Justgiving link, thank you: