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Initial Interest Statement

//Initial Interest Statement

Initial Interest Statement

We have just returned from the 2nd European G1D Conference successfully hosted by Matthews Friends.

The Conference brought together countries from around the world, educating and supporting, bringing Professionals and families together with the intention of spreading knowledge of G1D, it’s treatment the Ketogenic Diet, and possible alternatives.

At the conference a new G1D European Federation planning meeting was held. A representative from Italy, France, Spain, Belgium, Poland, Denmark, Estonia, Germany, Russia, Finland, and the UK, came together to discuss issues surrounding G1D, set goals, and begin the early steps to get the initiative off the ground.

Whilst at this conference Trudy Morgan, G1D parent and the current European Glut1 Deficiency Foundation Outreach Director and Emma Williams MBE, CEO of Matthew’s Friends Ketogenic Dietary Therapies Charity, discussed moving forward the G1D community within the UK. Although Matthew’s Friends has been ‘ acting ‘ as the UK Group for a while obviously as a Ketogenic Diet Treatment charity, the group also has many other commitments, so they are keen to see an official UK G1D group started.

Trudy Morgan is now leading this initiative with any new independent group formed continuing to work alongside Matthew’s Friends and the Glut1 Deficiency Foundation. Trudy is looking forward to taking these exciting new steps both as a formal UK Parent organisation and an important part of the European Federation of G1D.

If you would like to help, or have further questions please contact: tmorgan@G1DFoundation.org

To view the full statement, please click here.

2018-07-20T12:39:32+00:00