About Dravet Syndrome and DSUK
Dravet Syndrome is a rare neurological condition that affects approximately one out of every 19,000 children born in the UK. Dravet Syndrome causes severe, difficult to control seizures, alongside varying degrees of learning disability and other issues, such as autism, mobility problems, speech difficulties and feeding problems.
Living with a child or adult who has Dravet Syndrome can be a very difficult and potentially isolating experience. Dravet Syndrome UK (DSUK) was created in 2008 by a small group of parents with a mission to bring hope to families living with Dravet Syndrome through support, education and medical research.
Our dedicated team works closely together to achieve our main aims: supporting our members (more than 500 families), raising awareness and understanding about Dravet Syndrome, funding medical research, and improving the lives of those living with Dravet Syndrome.
Visit our website below for more information.